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Being
a kid with a spinal cord injury is hard. There is so much to adjust to!
You're growing, you're body's changing and now you have to deal with a
spinal cord injury! I know from experience that sometimes you want to
pull the covers over your head and never come out. Everything is
embarrassing; the way other kids look at you, how your parents talk to
you and brothers and sisters who can still be a pain!
Kids at school can be the worst.
Sometimes I think they are mean just to see us cry, but you don't have
to let that happen to you. I used to cry all the time when people stared
at me. I kept to myself and never tried to make friends after all my
friends left me when I got hurt when I was 12. That made me so sad and
lonely.
I wasted a lot of years feeling
sorry for myself until one day I decided that I wasn't going to do that
anymore. You know why? My crazy older brother got sick of my
pity party. When we were at the mall he started pushing me through a
store yelling, "Everybody stare at the handicapped girl! Yep, she's in a
wheelchair! Everybody LOOK!" I know it's hard to believe, but he sure did...and I thought my head
would pop right off because I was so embarrassed!
That day taught me something
(after I stopped thinking about murdering my brother). I learned that people stare, but
it's up to me to choose how I deal with that. When I felt sorry for
myself and acted shy, never reaching out to make friends, bullies made
fun of me while good kids felt sorry for me. When I started talking to
other kids and tried to get to know them (even though butterflies were
fluttering like crazy in my stomach!), I started making friends. Not all
the time; there were still a lot of jerks. But I sure had more friends
than when I didn't try!
Having friends makes everything
easier. It's too hard to be all alone, and even though family is a great
thing to have, sometimes you really need that special friend who shares
all your best secrets.
I know being in a wheelchair is
hard, but you can do it. If people stare at you, smile. Maybe they think
you're cute or like the outfit you have on. Never assume the worst.
You are more than just a kid in a
wheelchair, but it's up to you to show other people that. Mom and dads
can be the hardest to convince! They think you're a baby forever.
My
mom sure did, but she understood that I wanted to be on my own. Be
patient with your parents;
they want what's best for you. Someday, when you're ready, you'll know
what's
best for you and you can work WITH
them to have the life you want to live.
I found these cool websites that
might help you understand your spinal cord injury or show you that there
are other kids just like you:
Bear
in a Chair
Go to Camp
Kids Quest
KASA - Kids As Self Advocates
SNOW Kids Empowerment Zone
Wheelchair
Etiquette
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